Melvin Juette has said that becoming paralyzed in a gang-related shooting was "both the worst and best thing that happened" to him. The incident, he believes, surely spared the then sixteen year-old African American from prison and/or an early death. It transformed him in other ways, too. He attended college and made wheelchair basketball his passion-ultimately becoming a star athlete and playing on the U.S. National Wheelchair Basketball Team.
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Rather than embracing difference, academic ecosystems seek to normalize and homogenize ways of working and of being a researcher. As a consequence, ableism is an endemic experience in academia, though to date no attempt has been made to theorize those experiences. Ableism in Academia provides an interdisciplinary outlook on ableism that is currently missing.
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Pain, though a universal element of human experience, is dimly understood and sometimes barely managed. Pain Woman Takes Your Keys, and Other Essays from a Nervous System is a collection of literary and experimental essays about living with chronic pain. Sonya Huber moves away from a linear narrative to step through the doorway into pain itself, into that strange, unbounded reality. Although the essays are personal in nature, this collection is not a record of the author’s specific condition but an exploration that transcends pain’s airless and constraining world and focuses on its edges from wild and widely ranging angles.
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Various countries and international organizations have attempted to guard against discrimination and secure basic human rights for those whose lives are affected by disability. Yet despite such attempts many disabled persons in the United States and throughout the world still face exclusion from full citizenship and membership in their respective societies. They are regularly denied employment, housing, health care, access to buildings, and the right to move freely in public spaces. At base, such discrimination reflects a tacit yet pervasive assumption that disabled persons do not belong in society.
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This important and eye-opening collection explores ableism in academia from the viewpoint of academics' personal and professional experiences and scholarship. Through the theoretical lenses of autobiography, autoethnography, embodiment, body work and emotional labour, contributors from the UK, Canada and the US present insightful, critical, analytical and rigorous explorations of being ‘othered’ in academia.
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Lutz's human emotion drives through each page and challenges commonly held ideas that define autism either as a disease or as neurodiversity. We Walk is inspired by her own questions: What is the place of intellectually and developmentally disabled people in society? What responsibilities do we, as citizens and human beings, have to one another? Who should decide for those who cannot decide for themselves? What is the meaning of religion to someone with no abstract language?
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Adults often find it difficult to communicate with autistic students and try to 'fix' them. But what if we found a way to help these kids use their natural gifts to convey their thoughts and feelings? What if the traditional structure of language prevents them from communicating the full depth of their experiences? What if the most effective and most immediate way for people on the spectrum to express themselves is through verse, which mirrors their sensory-rich experiences and patterned thoughts? May Tomorrow Be Awake explores these questions and opens our eyes to a world of possibility.
Find in the Library: Main Collection LC4717.85 .M37 2022
Doris Zames Fleischer and Frieda Zames expand their encyclopedic history of the struggle for disability rights in the United States, to include the past ten years of disability rights activism.The book includes a new chapter on the evolving impact of the Americans with Disabilities Act, the continuing struggle for cross-disability civil and human rights, and the changing perceptions of disability. The authors provide a probing analysis of such topics as deinstitutionalization, housing, health care, assisted suicide, employment, education, new technologies, disabled veterans, and disability culture.
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Drawing on a wide range of case studies addressing how people can be 'othered' in contemporary media, the chapters focus on analyses of hateful discourses about disability on Reddit, news coverage of disability and education, media access of individuals with disabilities, the logic of memes and brain tumour on Twitter, celebrity and Down Syndrome on Instagram, disability in TV drama, the metaphor of disability for the nation; as well as an autoethnography of treatment of breast cancer. Providing a much-needed global perspective, Disability, Media, and Representations examines the relationship between self-representation and representations in either reinforcing or debunking myths around disability, and ways in which academic discourse can be differently articulated to study the relationship between media and disability.
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Commonly understood in terms of curb cuts, automatic doors, Braille signs, and flexible kitchens, Universal Design purported to create a built environment for everyone, not only the average citizen. But who counts as “everyone,” Aimi Hamraie asks, and how can designers know? Blending technoscience studies and design history with critical disability, race, and feminist theories, Building Access interrogates the historical, cultural, and theoretical contexts for these questions, offering a groundbreaking critical history of Universal Design.
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Taken together, these essays assert that a complex understanding of disability is crucial to an understanding of incarceration, and that we must expand what has come to be called 'incarceration.' The chapters in this book examine a host of sites, such as prisons, institutions for people with developmental disabilities, psychiatric hospitals, treatment centers, special education, detention centers, and group homes; explore why various sites should be understood as incarceration; and discuss the causes and effects of these sites historically and currently.
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The onslaught of neoliberalism, austerity measures and cuts, impact of climate change, protracted conflicts and ongoing refugee crisis, rise of far right and populist movements have all negatively impacted on disability. Yet, disabled people and their allies are fighting back and we urgently need to understand how, where and what they are doing, what they feel their challenges are and what their future needs will be. This comprehensive handbook emphasizes the importance of everyday disability activism and how activists across the world bring together a wide range of activism tactics and strategies.
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Before he received his diagnosis of Asperger Syndrome (AS) in the 1970s, Marc Fleisher was considered mentally retarded; yet he went on against the odds to gain two maths degrees and to undertake post-graduate studies in maths. In this engaging story Marc relates how, supported by his family and by services for people with autism, and despite family tragedy and personal difficulties, he learnt to get the most out of life.
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Told in his youth that he would not live past his 20s, Hawking will turn 70 in 2012, and today he continues to inspire millions, drawing rock-concert-sized crowds wherever he lectures. Science writer Kitty Ferguson has been working with Stephen Hawking for decades, and produced an internationally bestselling biography of his life in 1992. Now, she brings his life as well as his scientific discoveries up-to-date. This is a remarkable look at how one of the greatest scientific mind alive overcame the odds to become the truly inspirational figure he is today.
Find in the Library: Main Collection QC16.H33 F465 2012
Many people with dyspraxia and dyslexia also have ADHD. This fully revised edition of David Grant’s thought-provoking, insightful book develops our understanding of specific learning differences and considers the further challenges presented by these overlapping conditions.
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Medicine finally has discovered fatigue. Recent articles about various diseases conclude that fatigue has been underrecognized, underdiagnosed, and undertreated. Scholars in the social sciences and humanities have also ignored the phenomenon. As a result, we know little about what it means to live with this condition, especially given its diverse symptoms and causes.
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At the age of 14, Lynsey Calderwood suffered a traumatic brain injury that left her physically unmarked but destroyed her memory. Thrust back into an apparently nonsensical world of which she had no recollection, Lynsey spiralled downwards into depression and eating disorders as she became socially ostracized. This is the story, in her own words, of Lynsey's quest to discover her identity and, eventually, to come to terms with her disability.
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Love and Fatigue in America records an Englishman's decade-long journey through his newly adopted country in the company of a mystifying illness and a charismatic dog. Disability has shifted his interest in America from measuring its opportunities to taking the measure of its humanity. Forced to consider for himself the meaning of a healthy life and how best to nurture it, he incidentally delivers a report on the health of a country.
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Mild compulsions, such as shopping with military precision or hanging the tea towels just so, are something most of us have witnessed, or even engaged in. But compulsions exist along a broad continuum, and at the extremes there exist life-altering disorders. Sharon Begley's meticulously researched book is the first to examine all of these behaviors together--from obsessive-compulsive disorder (OCD) to hoarding, to compulsive exercise, even compulsions to do good.
Find in the Library: Main Collection RC533 .B446 2017
Your favorite YA authors including Ellen Hopkins, Maureen Johnson, and more recount their own experiences with mental illness in this raw, real, and powerful collection of essays that explores everything from ADD to PTSD. You're not alone. Millions of people are going through similar things. However issues around mental health still tend to be treated as something shrouded in shame or discussed in whispers. It's easier to have a broken bone--something tangible that can be "fixed"--than to have a mental illness, and easier to have a discussion about sex than it is to have one about mental health.You're not alone. Millions of people are going through similar things. However issues around mental health still tend to be treated as something shrouded in shame or discussed in whispers. It's easier to have a broken bone--something tangible that can be "fixed"--than to have a mental illness, and easier to have a discussion about sex than it is to have one about mental health.
Find in the Library: Main Collection RC464.A1 L54 2018
Lowell Handler has Tourette’s syndrome, a disorder characterized by exaggerated facial tics, sudden jerking movements of the body and limbs, and explosive public outbursts, usually in the form of expletives and racial epithets. Although he is a successful and acclaimed photojournalist, Handler has often seen himself as an outsider—a social outcast. With courage and candor, he recalls the difficulties he suffered growing up, the confusion he experienced when doctors misdiagnosed his bizarre behavior as a psychological aberration, and finally how, restless and despairing, he embarked on a quest for answers.
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Smart but Stuck offers 15 true and compelling stories about intelligent, capable teens and adults who have gotten "stuck" at school, work, and/or in social relationships because of their ADHD. Dr. Brown highlights the often unrecognized role that emotions play in this complex disorder. He explains why even very bright people with ADHD get stuck because they can focus well on some tasks that interest them, but often can't focus adequately on other important tasks and relationships.
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'Demystifying Disability' is a friendly handbook on the important disability issues you need to know about, including: how to appropriately think, talk, and ask about disability; recognizing and avoiding ableism (discrimination toward disabled people); practicing good disability etiquette; ensuring accessibility becomes your standard practice, from everyday communication to planning special events; appreciating disability history and identity; and, identifying and speaking up about disability stereotypes in media.
Find in the Library: Main Collection HV3011 .L33 2021a
Patrick Henry Hughes was born with a rare genetic disorder that left him without eyes and physically disabled. But he was blessed with rare musical talent, able to play the piano as a baby. Today, at age twenty, he is a nationally known pianist, singer, trumpeter, and marching-band member. With determined optimism, Hughes made "I am potential” his mantra, defying his disabilities at every turn.
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For many years Eileen Miller's daughter, Kim, was unable to verbalize her experiences and emotions, but she was able to communicate using a less conventional language: her art. The Girl who Spoke with Pictures tells the story of a young woman with autism, and how her enlightening drawings enabled her to share her view of the world. Illustrated with drawings created by Kim between the ages of 3 and 17 years old, the book gives an insight into how Kim expressed her thoughts and feelings through pictures, revealing her capacity to learn and be understood by those around her.
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Jeanette Purkis spent her early life reacting violently against her feelings of embarrassment, anger and confusion about her 'difference' from other people. She was unaware until well into adulthood that everything she found difficult, including her lack of success in forming relationships, could be a result of having Asperger Syndrome.
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Growing up as a paralyzed girl during the 90s and early 2000s, Rebekah Taussig only saw disability depicted as something monstrous (The Hunchback of Notre Dame), inspirational (Helen Keller), or angelic (Forrest Gump). Writing about the rhythms and textures of what it means to live in a body that doesn’t fit, Rebekah reflects on everything from the complications of kindness and charity, living both independently and dependently, experiencing intimacy, and how the pervasiveness of ableism in our everyday media directly translates to everyday life.
Find in the Library: Main Collection PC406.P3 T38 2020
A writer diagnosed with dyslexia and ADHD as a child explores the toll the system takes on kids who are not "normal" and advocates for a revolution in the way society thinks about diversity, abilities, and disabilities.
Find in the Library: Main Collection HV1568 .M65 2019
The first critical study of personal narrative by women with disabilities, Unruly Bodies examines how contemporary writers use life writing to challenge cultural stereotypes about disability, gender, embodiment, and identity. Mintz shows that by refusing inspirational rhetoric or triumph-over-adversity narrative patterns, these authors insist on their disabilities as a core--but not diminishing--aspect of identity. They offer candid portrayals of shame and painful medical procedures, struggles for the right to work or to parent, the inventive joys of disabled sex, the support and the hostility of family, and the losses and rewards of aging. Mintz demonstrates how these unconventional stories challenge feminist idealizations of independence and self-control and expand the parameters of what counts as a life worthy of both narration and political activism.
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In 1989 the Geto Boys released a blistering track, "Size Ain't Shit," that paid tribute to the group's member Bushwick Bill. Born with dwarfism, Bill was one of the few visibly disabled musicians to achieve widespread fame and one of the even fewer to address disability in a direct, sustained manner. Initially hired as a dancer, Bill became central to the Geto Boys as the Houston crew became one of hip-hop's most important groups. Why Bushwick Bill Matters chronicles this crucial artist and explores what he reveals about the relationships among race, sex, and disability in pop music.
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In 1959, seventeen-year-old Gary Presley was standing in line, wearing his favorite cowboy boots and waiting for his final inoculation of Salk vaccine. Seven days later, a bad headache caused him to skip basketball practice, tell his dad that he was too ill to feed the calves, and walk from barn to bed with shaky, dizzying steps. He never walked again. Set among the hardscrabble world of the Missouri Ozarks, sizzling with sarcasm and acerbic wit, his memoir tells the story of his journey from the iron lung to life in a wheelchair.
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Over twenty years ago, in a small Israeli town, a desperate mother told a remarkable lie. She told her friends and family that her newborn child had died. That lie became the catalyst for the unfolding truth of the adoption of that same baby ”Michael” who is, in fact, very much alive and now twenty-two years old. He also has Down syndrome. When Kathryn Hulings adopted Michael as an infant, she could not have known that he would save her life when she became gravely ill and was left forever physically compromised. Her story delights in how Michael's life and hers, while both marked by difference and challenge, are forever intertwined in celebration and laughter.
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Kuusisto was born legally blind, but being raised in the 1950s he was taught to deny his blindness in order to 'pass' as sighted. As an adult, he coped with his limited vision until he was laid off. With no other job opportunities in his vicinity, he would have to travel to find work. He found himself at Guiding Eyes paired with a Labrador named Corky. Here he recounts how partnership with a guide dog changed his life, and the heart-stopping, wondrous adventure that began for him in midlife.
Find in the Library: Main Collection PS3561.U85 Z46 2018
Joan is an adult with cerebral palsy who grew up when compulsory education was not in place for all children. Her memories of her childhood before inclusion, her development as a teenager and her adult life are chronicled without sentiment and this book offers the reader an autobiography of someone who lives with a significant disability. The book is supported by SCOPE who have provided an introduction and informative commentary about cerebral palsy.
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In 1959, the year Terry Galloway turned nine, the voices of everyone she loved began to disappear. No one yet knew that an experimental antibiotic given to her mother had wreaked havoc on her fetal nervous system, eventually causing her to go deaf. With disarming candor, she writes about her mental breakdowns, her queer identity, and living in a silent, quirky world populated by unforgettable characters. What could have been a bitter litany of complaint is instead an unexpectedly hilarious and affecting take on life.
As a young blind girl, Georgina Kleege repeatedly heard the refrain, "Why can't you be more like Helen Keller?" Kleege's resentment culminates in her book "Blind Rage: Letters to Helen Keller," an ingenious examination of the life of this renowned international figure using 21st-century sensibilities. Kleege's absorption with Keller originated as an angry response to the ideal of a secular saint, which no real blind or deaf person could ever emulate.
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Author, advocacy journalist, disability rights activist, feminist, and founder of Mouth magazine, Lucy Gwin (1943—2014) made her mark by helping those in "handicaptivity" find their voice. Gwin produced over one hundred issues of the magazine—one of the most radical and significant disability rights publications—and masterminded its acerbic, sometimes funny, and often moving articles about people from throughout the disability community.
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One of the most influential disability rights activists in US history tells her personal story of fighting for the right to receive an education, have a job, and just be human. A story of fighting to belong in a world that wasn't built for all of us and of one woman's activism--from the streets of Brooklyn and San Francisco to inside the halls of Washington--Being Heumann recounts Judy Heumann's lifelong battle to achieve respect, acceptance, and inclusion in society.
Find in the Library: Main Collection JC571 .H49 2020
Beauty is a Verb is the first of its kind: a high-quality anthology of poetry by American poets with physical disabilities. Poems and essays alike consider how poetry, coupled with the experience of disability, speaks to the poetics of each poet included. The collection explores first the precursors whose poems had a complex (and sometimes absent) relationship with disability, such as Vassar Miller, Larry Eigner, and Josephine Miles. It continues with poets who have generated the Crip Poetics Movement, such as Petra Kuppers, Kenny Fries, and Jim Ferris.
Find int he Library: Main Collection PS591.D57 B43 2011
In 1976 Gelya Frank began writing about the life of Diane DeVries, a woman born with all the physical and mental equipment she would need to live in our society--except arms and legs. Frank was 28 years old, DeVries 26. This remarkable book--by turns moving, funny, and revelatory--records the relationship that developed between the women over the next twenty years. An empathic listener and participant in DeVries's life, and a scholar of the feminist and disability rights movements, Frank argues that Diane DeVries is a perfect example of an American woman coming of age in the second half of the twentieth century.
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The first book to attempt to provide a framework for analyzing disability through the ages, Henri-Jacques Stiker's now classic A History of Disability traces the history of western cultural responses to disability, from ancient times to the present. The sweep of the volume is broad; from a rereading and reinterpretation of the Oedipus myth to legislation regarding disability, Stiker proposes an analytical history that demonstrates how societies reveal themselves through their attitudes towards disability in unexpected ways.
Find in the Library: Main Collection HV 1552 .S8413 2019a
Disability hate crimes are a global problem. They are often violent and hyper-aggressive, with life-changing effects on victims, and they send consistent messages of intolerance and bigotry. This ground-breaking book shows that disability hate crimes do exist, that they have unique characteristics which distinguish them from other hate crimes, and that more effective policies and practices can and must be developed to respond and prevent them.
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A heartfelt and inspiring memoir and celebration of Deaf culture by Nyle DiMarco, actor, producer, two-time reality show winner, and cultural icon of the international Deaf community.
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A neurobiologist reexamines the personal nature of perception in this guide to a new model for our senses. Although doctors are able to cure some forms of congenital blindness and deafness, doing so creates another problem: most people struggle with their new senses. To ask someone to adapt to a new sense is to ask them to reshape their entire world. This idea is no more apparent than in the cases of people who gain senses as adults.
Find in the Library: Main Collection HV3023 .A3 B37 2021
"A groundbreaking collection of first-person writing on the joys and challenges of the modern disability experience: Disability Visibility brings together the voices of activists, authors, lawyers, politicians, artists, and everyday people whose daily lives are, in the words of playwright Neil Marcus, 'an art . . . an ingenious way to live.'
Find in the Library: Main Collection HV1552.3 .D5702020a